life with an ostomy. candid, not sugar-coated. empowered, not embarrassed.
I argued with doctors, kept doing Internet research for some sort of viable alternative (all of which my doctors rejected), cried to my mom and boyfriend and a few friends, fought with my mom, cried, cried, cried, cried, hated myself, cried and scratched my wrists until they bled- becasue I needed some way to release the pain I was feeling inside. It was so difficult accepting that my body would never be the same again.
posted by ~mypinkbutton~ at 03:31
Crohn's Disease... diagnosed in 1992. Severely scarred rectum, anus and large intestine resulted in having permanent ileostomy surgery in 2002. Protocolectomy included. My life is about a lot more than this ostomy of course. But there's no doubt that this painful disease and body-altering surgery has made ruptions and repercussions in all aspects of life, and I now tend to approach life from the inside out. All my insides, my shit, my guts, have been opened up to the public... and it's helped me see we all have all this shit on the inside. And we go on...
1 Comments:
I got the pink button, too, and have had it since
sept, 04. I had surprising cancer, rectal cancer, knew it ran in family, Dad, uncles, aunt, and grandpa all died of it, but the surprise was I was only 60 when diagnosed. Am not dealing too well with the bag, It's making me nutty. I admire how well you are handleing it. Love reading your posts, maybe I can get a handle on my situation thru you. Thanks=Love
10:25 p.m., May 03, 2006
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