Comments on My Pink Button: Not hiding

Hi MPB,Just finished reading your blog from start ...

2008-04-20T17:43:00.000-04:00

Hi MPB,
Just finished reading your blog from start to finish,and can't wait for more.I am a 10-year survivor of Stage 3 rectal cancer,and have a colostomy I've named Pedro--I gave it a name and identity once I realized the damn thing had a mind of its own, and I was just along for the ride. Your pictures of the surgery site (so THAT'S what mine looks like!!)and of the whole bag-change process were so farmiliar,yet seeing it from outside myself was incredibly validating.I know many hundreds of thousands of people have had these types of surgeries, yet almost none will speak of the reality of dealing with it forever-- stinky, messy, unpredictable,yet unavoidable,permanent, and possibly lifesaving.You absolutely ROCK for totally giving the no-holds-barred,show-and-tell-it-like-it-is TRUTH.Please,keep writing!!!

Looks like another dead and abandoned blog!

2008-03-22T23:16:00.000-04:00

Looks like another dead and abandoned blog!

Hey, I just found your blog after reading a post o...

2008-03-19T21:46:00.000-04:00

Hey, I just found your blog after reading a post on the Poop Report (I had been researching hot and horrible garlic farts, of all things). I am looking forward to reading your archives because I grew up with a dad with an ostomy. He had colorectal cancer when I was 11 (I'm now 44). So he's lived with an ostomy for 33 years. It's always herniated; he's had several repair operations to no avail. The stench can be horrific and he lives in fear of living beyond the time when he can care for his ostomy himself (today's his 85th birthday). But despite all this, he's never complained once about having an ostomy. Not once. Whenever anyone mentions how difficult it must be/have been all these years, he always replies, "But think of the alternative!" Thanks for sharing your experiences. I've read two with interest and really can't wait to read the rest.

Thanx for keeping it real!

2008-03-08T17:01:00.000-05:00

Thanx for keeping it real!

Thank you very much for sharing your experiences. ...

2008-03-04T20:02:00.000-05:00

Thank you very much for sharing your experiences. I started reading about you in the "poopreport" after trying to find some information on this topic. As a student occupational therapist I am constantly trying to hear about/read life experiences so that I could maybe getting a slightly better understanding about what a person could be feeling/dealing with. You have helped me immensely, thank you! I hope you will write again soon:)

thank you for this blog. i'm a student nurse and ...

2008-03-01T19:28:00.000-05:00

thank you for this blog. i'm a student nurse and i have cared for a few people with colostomies so far. i always thought it would be "gross and scary", but it's not at all.

honestly now, i think i'd rather empty someone's colostomy bag, which is usually a pretty clean process --- rather than wipe an incontinent person's bum, which is often way more embarassing and odiforous.

kudos and hugs for you.

i found your blog somewhat randomly through itty b...

2008-02-23T00:46:00.000-05:00

i found your blog somewhat randomly through itty bitty kitty committee> can i buy a bowel

i do not have crohns, but your blog really helps give me some perspective. i have ibs and have struggled a lot with anxiety and shame related to bathroom issues. thanks so much for reminding me poop is nothing to be ashamed of.

Just stumbled on your blog. LOVE LOVE LOVE it.......

2008-02-01T20:07:00.000-05:00

Just stumbled on your blog. LOVE LOVE LOVE it..... I am a fellow assless wonder with an ileostomy. Your blogs are right on point...keep em coming! Sue

Hello, thanks for being so utterly honest about li...

2008-01-24T07:14:00.000-05:00

Hello, thanks for being so utterly honest about life with a stoma. I don't think I've ever seen anyone be so frank like you have, but I'm grateful you are. I too have Crohn's and have had 6 ops. I used to have an ileostomy but it was reversed. However I remember all the problems i used to have with it (it used to leak loads and my stoma bag kept falling off and I used to worry when I was out in public what would happen if it leaked then - which it did several times, and I hated it. I was so relieved to get it reversed although I know that I might need one again one day). I think you cope with it all so admirably, you are an inspiration. Take care, Ruth x

I'm totally cool with your bag but draw the line a...

2007-12-17T13:27:00.000-05:00

I'm totally cool with your bag but draw the line at vaginal excavations in the shower at the YMCA. That is really gross and unsanitary. "Just showering and cleaning myself" doesn't extend to flinging around articles soaked with your menstrual blood in a public shower. Get a grip.

Hello! I'm a regular reader and was reading the c...

2007-11-24T13:30:00.000-05:00

Hello! I'm a regular reader and was reading the comments. I just wanted to point out that a woman CAN become pregnant when on her period. A friend of mine (a doctor) confirmed this for me.

-Liz

love you, miss you, happy to see you writing again...

2007-11-14T01:11:00.000-05:00

love you, miss you, happy to see you writing again!!!

xoxox

K

i only had a piece of a condom in the shower with ...

2007-10-28T12:55:00.000-04:00

i only had a piece of a condom in the shower with me - and it was way up my vag because me and my partner had had sex that morning and the condom broke.

for those of you astute readers who wonder why i was using a condom while i was menstruating -thus not fertile- it's because i was having totally irregular periods and wanted to be safe.

~mpb

PS- i am in Japan right now... the toilets here are amazing!!
ps

YAY, YOU'RE BACK!! I'd been checking your blog ev...

2007-10-28T05:27:00.000-04:00

YAY, YOU'RE BACK!! I'd been checking your blog every once in a while hoping you'd put in a new entry, and every time, I'd be disappointed.

I'm so glad to read yet another beautifully written blog entry!!

-Another Amy (odd coincidence)

I don't get why you had the condom in the shower w...

2007-10-24T17:36:00.000-04:00

I don't get why you had the condom in the shower with you...

You said something in your radio show about nutrit...

2007-10-23T01:33:00.000-04:00

You said something in your radio show about nutrition and crohns disease. I'd like to hear more about what you think the correlations are. What do you think caused your disease? What sorts of foods are best and most harmful? Do people in other parts of the world suffer from crohns.

Thanks,

Amy

Hello! I love your blog, and I'm very happy you up...

2007-10-22T22:49:00.000-04:00

Hello! I love your blog, and I'm very happy you updated it.
You are a very good writer, and a very interesting person as well.

Have a nice day!

I am about three weeks after having my ileostomy f...

2007-10-19T09:09:00.000-04:00

I am about three weeks after having my ileostomy formed. I stumbled upon your blog last night and read a few entries. But I got tired, so I bookmarked and said I'd come back to it.

I just finished reading the whole thing in one sitting and wanted to leave you a note to thank you for sharing. Reading about your experiences have been educational and I can already feel some thoughts moving around that will eventually form a changed opinion about how I feel about it all. They way you feel about your stoma is inspiring already, and I'm still processing the whole thing.

But mostly, you're damn-funny. :D Go insider ostomate humour!