Comments on My Pink Button: Not hiding

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2009-11-07T09:30:19.643-05:00

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I am with jillian. Flinging bloody pieces of rubbe...

2009-10-16T01:22:45.680-04:00

I am with jillian. Flinging bloody pieces of rubber around in a public shower is FAR more disturbing than a bag you NEED. Yuck!

I hope you start writing again soon. Your blog is ...

2009-07-27T00:31:56.829-04:00

I hope you start writing again soon. Your blog is very insightful.

Oh Pink Button, I am so happy I discovered you! I ...

2009-05-14T20:06:00.000-04:00

Oh Pink Button,
I am so happy I discovered you! I am off to Memorial Sloan-Kettering Cancer Center in NYC tomorrow to get the news on my failed--or not failed?--anal cancer treatment. My hometown docs think a permanent colostomy is a necessity. Your butt-kicking approach is an inspiration. Thank you for the dark humor, insight, and psychological fuck-you-ness.

Jesus -- i love this blog.

2008-12-18T00:09:00.000-05:00

Jesus -- i love this blog.

I hope that you are still writing. I had my surge...

2008-11-07T15:01:00.000-05:00

I hope that you are still writing. I had my surgery one year ago. I did no research. I knew nothing. I just knew that I had to put an end to 20 yrs of pain and accidents. I literally could not get the mail without really planning it. Any travel would require 2 days of no eating and drugs. No one tells you about the smell, the sores on your skin, the accidents, the gas. I woke up one morning with what looked like a small inflated football sticking out of my side. Thank you for your words. I wish I had found you sooner. Please, please do not stop. I check your blog every day.

Your mother is a wise woman.

2008-09-30T21:46:00.000-04:00

Your mother is a wise woman.

Girl, you nasty. Scooping things out of your vajaj...

2008-09-18T03:08:00.000-04:00

Girl, you nasty. Scooping things out of your vajajay belongs in a toilet stall.

Hey, thank you for writing this. I had Ulcerative...

2008-09-17T22:21:00.000-04:00

Hey, thank you for writing this. I had Ulcerative Colitis for several years through high school and Uni. I just had the illeostomy in early august 08. Reading your blog really helped me to stop feeling sorry for myself and get on with life. Its nice to know that there are others in similar situations. We should have conventions or something, with thousands of pimped out washrooms.

Hello from a fellow bagger. You're quite the inspi...

2008-08-31T00:54:00.000-04:00

Hello from a fellow bagger. You're quite the inspiration! I was diagnosed in August 2006 with stage IV colon cancer and got pretty much the same surgery. The anus removal has been the most painful thing to me. Now I know how a cored apple feels. Sorry to hear about the sleeping bag episode. I went hiking on the Appalachian Trail in the middle of my chemo (hiking with a chest catheter is the pits!)and messing up the inside of my sleeping bag was a big worry at first, but thankfully it hasn't happened. Good luck in the future and I've bookmarked your blog so I'll be a regular reader from now on!

Hi Just found your site, GREAT and so frank and tr...

2008-05-28T02:36:00.000-04:00

Hi Just found your site, GREAT and so frank and truthful. I can relate to some of this stuff having a protocolectomy / ileostomy operation back in 1994...arrgh
Keep writing I have marked this as a fav site so I will be back to read all the items.

best regards from a visitor from the Isle of Man.

Hi MPB,Just finished reading your blog from start ...

2008-04-20T17:43:00.000-04:00

Hi MPB,
Just finished reading your blog from start to finish,and can't wait for more.I am a 10-year survivor of Stage 3 rectal cancer,and have a colostomy I've named Pedro--I gave it a name and identity once I realized the damn thing had a mind of its own, and I was just along for the ride. Your pictures of the surgery site (so THAT'S what mine looks like!!)and of the whole bag-change process were so farmiliar,yet seeing it from outside myself was incredibly validating.I know many hundreds of thousands of people have had these types of surgeries, yet almost none will speak of the reality of dealing with it forever-- stinky, messy, unpredictable,yet unavoidable,permanent, and possibly lifesaving.You absolutely ROCK for totally giving the no-holds-barred,show-and-tell-it-like-it-is TRUTH.Please,keep writing!!!

Looks like another dead and abandoned blog!

2008-03-22T23:16:00.000-04:00

Looks like another dead and abandoned blog!

Hey, I just found your blog after reading a post o...

2008-03-19T21:46:00.000-04:00

Hey, I just found your blog after reading a post on the Poop Report (I had been researching hot and horrible garlic farts, of all things). I am looking forward to reading your archives because I grew up with a dad with an ostomy. He had colorectal cancer when I was 11 (I'm now 44). So he's lived with an ostomy for 33 years. It's always herniated; he's had several repair operations to no avail. The stench can be horrific and he lives in fear of living beyond the time when he can care for his ostomy himself (today's his 85th birthday). But despite all this, he's never complained once about having an ostomy. Not once. Whenever anyone mentions how difficult it must be/have been all these years, he always replies, "But think of the alternative!" Thanks for sharing your experiences. I've read two with interest and really can't wait to read the rest.

Thanx for keeping it real!

2008-03-08T17:01:00.000-05:00

Thanx for keeping it real!

Thank you very much for sharing your experiences. ...

2008-03-04T20:02:00.000-05:00

Thank you very much for sharing your experiences. I started reading about you in the "poopreport" after trying to find some information on this topic. As a student occupational therapist I am constantly trying to hear about/read life experiences so that I could maybe getting a slightly better understanding about what a person could be feeling/dealing with. You have helped me immensely, thank you! I hope you will write again soon:)

thank you for this blog. i'm a student nurse and ...

2008-03-01T19:28:00.000-05:00

thank you for this blog. i'm a student nurse and i have cared for a few people with colostomies so far. i always thought it would be "gross and scary", but it's not at all.

honestly now, i think i'd rather empty someone's colostomy bag, which is usually a pretty clean process --- rather than wipe an incontinent person's bum, which is often way more embarassing and odiforous.

kudos and hugs for you.

i found your blog somewhat randomly through itty b...

2008-02-23T00:46:00.000-05:00

i found your blog somewhat randomly through itty bitty kitty committee> can i buy a bowel

i do not have crohns, but your blog really helps give me some perspective. i have ibs and have struggled a lot with anxiety and shame related to bathroom issues. thanks so much for reminding me poop is nothing to be ashamed of.

Just stumbled on your blog. LOVE LOVE LOVE it.......

2008-02-01T20:07:00.000-05:00

Just stumbled on your blog. LOVE LOVE LOVE it..... I am a fellow assless wonder with an ileostomy. Your blogs are right on point...keep em coming! Sue

Hello, thanks for being so utterly honest about li...

2008-01-24T07:14:00.000-05:00

Hello, thanks for being so utterly honest about life with a stoma. I don't think I've ever seen anyone be so frank like you have, but I'm grateful you are. I too have Crohn's and have had 6 ops. I used to have an ileostomy but it was reversed. However I remember all the problems i used to have with it (it used to leak loads and my stoma bag kept falling off and I used to worry when I was out in public what would happen if it leaked then - which it did several times, and I hated it. I was so relieved to get it reversed although I know that I might need one again one day). I think you cope with it all so admirably, you are an inspiration. Take care, Ruth x

I'm totally cool with your bag but draw the line a...

2007-12-17T13:27:00.000-05:00

I'm totally cool with your bag but draw the line at vaginal excavations in the shower at the YMCA. That is really gross and unsanitary. "Just showering and cleaning myself" doesn't extend to flinging around articles soaked with your menstrual blood in a public shower. Get a grip.

Hello! I'm a regular reader and was reading the c...

2007-11-24T13:30:00.000-05:00

Hello! I'm a regular reader and was reading the comments. I just wanted to point out that a woman CAN become pregnant when on her period. A friend of mine (a doctor) confirmed this for me.

-Liz

love you, miss you, happy to see you writing again...

2007-11-14T01:11:00.000-05:00

love you, miss you, happy to see you writing again!!!

xoxox

K

i only had a piece of a condom in the shower with ...

2007-10-28T12:55:00.000-04:00

i only had a piece of a condom in the shower with me - and it was way up my vag because me and my partner had had sex that morning and the condom broke.

for those of you astute readers who wonder why i was using a condom while i was menstruating -thus not fertile- it's because i was having totally irregular periods and wanted to be safe.

~mpb

PS- i am in Japan right now... the toilets here are amazing!!
ps

YAY, YOU'RE BACK!! I'd been checking your blog ev...

2007-10-28T05:27:00.000-04:00

YAY, YOU'RE BACK!! I'd been checking your blog every once in a while hoping you'd put in a new entry, and every time, I'd be disappointed.

I'm so glad to read yet another beautifully written blog entry!!

-Another Amy (odd coincidence)